The Robin Study is Looking for New Mothers to Participate in a Research Study

The Robin Study is a research study evaluating an investigational oral medication in women with postpartum depression (PPD).  An investigational medication is a study drug that will be tested during a study to see if it is safe and effective for a specific condition and/or group of people.

To be eligible for the study, you must:
  • Be 18 to 45 years of age
  • Have given birth within the last 6 months
  • Feel any of these symptoms associated with PPD for 2 weeks or longer:  insomnia, crying/sadness, lack of appetite, sudden weight loss, hopelessness, lack of interest in baby, loss of interest in things you used to enjoy, intrusive/disturbing thoughts
  • Have symptoms that began no earlier than the third trimester and no later than the first four weeks following delivery (I know that many mothers don’t develop PPD until 6 weeks or later, but this is a specific requirement for this particular research study)

If you qualify and decide to participate:

  • Your PPD symptoms will be continually monitored by qualified study staff (nurses and clinicians), under the guidance of the study doctor.
  • You will receive study-related medical care and the assigned study drug at no cost.
  • You will be required to take the assigned study drug at home every night for 14 days. You’ll have nightly phone calls with the study coordinator and will come into the study site three times while on the medication and two times as follow-up. Your total participation will last about 76 days.
  • Transportation may be provided for those who require assistance.

To learn more about the study, review frequently asked questions, and see if/how you may qualify, please visit www.TheRobinStudy.com, call (844) 901-0101 to speak with a study representative, or fill out the contact form and a study representative will follow up with you.

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Go See Tully, and Let’s Talk

Just a quick post tonight with a movie review of “Tully” written by a friend of mine, Mrs. W.

Initially, Mrs. W was annoyed like I was about the movie’s apparent failures based on a couple of negative movie reviews she and I both read this past weekend.  Like me, she did not want to see the movie.  That is, until I sent her the review from a postpartum psychosis survivor, Melissa Bangs, who happens to be the star of her own one-woman show “Playing Monopoly with God” that’s been on tour for the past couple of years and is headed to New York City next week!  Reading this positive review of someone who is a PPP survivor peaked Mrs. W’s interest, and so she went to see “Tully” yesterday.  Please take a moment to read Melissa’s personal thoughts from the perspective of an actual PPP survivor!

Without further ado, here’s Mrs. W’s movie review:

“Ok. So I saw it tonight………….

  1. There are a couple triggering scenes.  One of them was in the first half of the movie, which almost caused me to leave because my whole body got amped up like I was going to have an anxiety attack.  But I calmed myself down and was able to sit through the last half of the movie, which was less emotionally jarring.
  2. I don’t want to spoil the movie, but I will say that the main character definitely has postpartum psychosis but no one ever says it outright.  There are a few things said (like when her husband told the doc she was depressed with their second child) that might mislead people to think she has postpartum depression (PPD), but I think the movie left out the actual diagnosis on purpose because it wants the audience to figure it out on their own.  However, I do think the movie shines a light on postpartum mental health and how a struggling mother could slip through the cracks …to the point that even a husband who doesn’t pay close attention would fail to notice his wife’s condition.
  3. It is a shame that the doctor in the movie doesn’t say it outright that she has PPP.  It was definitely a missed opportunity to shed light on the subject no one talks about.
  4. Also, Charlize Theron played the heck out of that role.”

Hmmmm, it’s interesting that Mrs. W thinks the film makers deliberately left out the diagnosis of PPP to cause the audience to want to figure it out on their own.  I, on the other hand, don’t have such an optimistic perspective and in this case would not give the film makers such credit for the reasons stated in my blog post about Tully.  What the movie and the subsequent posts on social media has done, at least in the maternal mental health circle, is promote discussion about maternal mental health.  But that’s within the already existing circles of advocates, mental healthcare practitioners, and survivors.  I haven’t really heard much about discussions going on among the general public, which is why first and foremost we must capture the proper message about maternal mental health conditions (and bust stigmas associated with them) to educate people, share widely and DISCUSS!  THIS is why I am still annoyed about the lost opportunity to educate the public.  The film makers could have easily inserted a diagnosis into the screenplay.  But they didn’t.

Anyway, the whole point of this post is to weigh different perspectives and not let a couple of negative movie reviews completely shut off all interest in seeing a movie.  Just as Mrs. W had done, she started out with an opinion that was formed based on a couple of negative reviews of people (not really clear if they themselves were PPD or PPP survivors) who did see the movie.  Because of these negative reviews, she was annoyed and had zero interest in seeing the movie.  After I showed her Melissa’s review, she went to see it and was able to form her own opinion after seeing it.  Then she shared with me her thoughts about the movie.

Mrs. W did confirm that the movie:

  1. Puts a light on maternal mental health in terms of mothers’ struggles being real and women like Tully falling through the cracks due to lack of awareness and lack of support from significant others and loved ones.  Motherhood is not easy.  A mother who is struggling will fall through the cracks if she doesn’t get the help she needs.  New mothers need practical/emotional help during the first couple of months.  Forget about the whole supermom thing.
  2. Falls short in raising awareness that postpartum mood disorders are experienced by 1 out of 7 mothers and definitely not anything to be ashamed of.  They are very real, serious, painful to experience, and life-changing.

And yes, Charlize Theron plays the heck out of ANY role she plays.  But for me, even if Charlize earns an Oscar nom, I still can’t set aside my annoyance (that I blogged about previously) to see it.  As a person of principle, I would not want to pay even $1 to watch a movie that fails an opportunity to educate the population properly by sending unclear signals on the condition Tully really suffered from.  To each his/her own, as they say…..

 

Recent PPD Successes and Failures in the Media

I went from blogging once in two months to 8 times so far this month!  With Maternal Mental Health Month a little less than a week away, a lot of fundraising, training and public awareness events are being prepped to happen throughout May.  Another reason to love this time of year….hello spring!

Okay, so the title of my post is “Recent PPD Successes and Failures in the Media.”  There were 2 things in the media that caught my attention on my Facebook feed today that motivated me to blog once again. One is a success and one is a failure.  If you’ve been following my blog for some time, you would know that one of my favorite things to blog about are successful and failed attempts at depicting new mothers suffering from a mood disorder in the media, like my recent post about “Black-ish.”

Let’s start with the SUCCESS……
On this morning’s Megyn Kelly TODAY a postpartum mood and anxiety disorder (PMAD) survivor, Ashley Abeles, shared her experience.  The segment also included brief appearances by Dr. Catherine Birndorf and Paige Bellembaum who are the Medical Director and Program Director, respectively, of The Motherhood Center of New York. The Motherhood Center provides support services for new/expectant moms and treatment for PMADs. I met these ladies from the Motherhood Center at previous Postpartum Support International conferences.  If you missed the show, you can watch it here.  We need more moms sharing their PMAD experiences on shows like this!  Experiences kind of like my own that, as her husband explains, isn’t “headline-grabbing” material involving the tragic death of the mother and/or baby.  Because guess what, the vast majority of PMADs experienced by new mothers are NOT headline-grabbing material.  They’re mothers suffering from anxiety, panic attacks, insomnia, weight loss and/or intrusive/obsessive thoughts who need medication and/or therapy to recover.  Yes, severe postpartum depression (PPD) can cause a mother to feel so depressed that she just wants to disappear or her baby would be better off without her since she can’t feel joyous like a new mother should, but postpartum psychosis is too-often confused with and lumped under PPD (as a catch-all term) by both the general public and doctors alike.  Yes, doctors!  Also, PPD is not the same as the baby blues and even today, doctors still mix up the two!  We’ve come a long way since I had PPD when it comes to information in the news, in publications, on the Internet and in social media.  But we still have a LONG way to go.

And here’s the FAILURE……
The movie “Tully” starring Charlize Theron.  A Motherly post by Diana Spalding titled “We’ve seen Tully– and we’ve got some real concerns” it seems yet another movie director/producer has failed to do their homework about PPD before coming up with the screenplay and releasing it.  What every movie director/producer or TV show director/producer needs to do before even contemplating a movie or TV show about PPD is consult with Postpartum Support International.  This organization is the leading authority on maternal mental health matters and should ALWAYS be consulted to ensure the right information is incorporated into the movie/show plot.  “Tully” attributes the bizarre experiences of Tully (i.e., hallucinations she has of Marlo, frantic baking and cleaning late into the night, impulsive behavior that leads to her car crash, suicidal ideation) to PPD.  However, her behavior is actually attributable to postpartum psychosis, hence this movie spreads misinformation about what PPD really is.  Her talk of suicide is brushed off by her husband, which I can see happening in the real world when loved ones fail to “get it” and ignore the mother’s serious need for help.  While this is a movie and movies don’t necessarily have to educate–after all, this is not a documentary–it should at least get terms right (postpartum psychosis, NOT PPD!)  and it should try to mention at some point that yes, the new mother who’s obviously not well and diagnosed, albeit incorrectly, with PPD needs help!  Maybe put some kind of disclaimer at the beginning or end of the movie like you sometimes see at the beginning or end of a TV show.  Something along the lines of:

“Approximately one out of seven new mothers suffers from a postpartum mood disorder.  If you are a new mother that is experiencing any of the following symptoms: insomnia, crying/sadness for more than 2 weeks, lack of appetite, sudden weight loss, rage, hopelessness, lack of interest in the baby, loss of interest in things you used to enjoy, thoughts of harming the baby or yourself, please know that you are not alone, what you are experiencing is not your fault, and you will recover if you get the right treatment.  Contact Postpartum Support International at 800-944-4773 or visit http://www.postpartum.net

Sounds of Silence 10th Annual Run/Walk – May 12, 2018

Piggybacking off my last post from 4 days ago in which I blogged about the Lisa Mary Reilly Visioning Education Series, today I would like to invite folks who live in the Tri-State area to join the Sounds of Silence, Friends of the Postpartum Resource Center of New York’s 10th annual run/walk in memory and celebration of Lisa Mary Reilly and help raise funds in the effort to increase awareness of perinatal mood disorders, such as postpartum depression (PPD), postpartum OCD, and postpartum psychosis.  Not only is this for an excellent cause, it will be a nice opportunity to race (or walk) a beautiful 5K boardwalk along the Atlantic Ocean.

I have posted about this annual run/walk every year since the first fundraiser back in 2009.  That year, I was one of the two top fundraisers, bringing in over $1,000 (as an individual).  This annual fundraiser was started back in 2009 by sisters Erin Mascaro and Lisa Reilly. It was Lisa’s experience with PPD after the birth of her daughter–an experience so deeply painful and full of suffering (a suffering that many others like her feel forced to endure in silence) that was witnessed by Erin and other loved ones–that motivated Erin and Lisa to break the silence of PPD with the Sounds of Silence annual run/walk .

Please help spread the word about this fundraiser by blogging or sharing the flyer on Facebook/Twitter.

Sponsors Needed:  They are looking for sponsors, so companies looking for opportunities to support a wonderful cause that benefits mothers and their families should seriously consider this opportunity!  Click here for more info.

Date:  Saturday, May 12, 2018

Time:  Registration from 8:00-9:00; race/walk begins at 9:30 AM.  There will be a Kids Fun Run, Raffles, Food and more.

Place:   Jones Beach State Park, Wantagh, Long Island (Field 5)

Registration:  $25 (adults); $15 (ages 11-18); $5 (ages 10 and under); register here.  Registration price increases after May 5th.

Virtual Participation:  For those of you who can’t make it in person, you can participate virtually by registering via this link.

What first 250 entrants and first 500 registrants will receive:  First 250 entrants will receive commemorative t-shirts, and first 500 registrants (on day of) will receive race swag bags.  There will be a post-race raffle for prizes that include gift baskets, gift certificates, etc.  All who raise $200+ will receive a Sounds of Silence beach towel.

50/50 Fundraiser:  For the first time, there will be a 50/50 Fundraiser to benefit the Postpartum Resource Center of New York.  The drawing will take place during the After Party at Fatfish Wine Bar and Bistro, Bay Shore, NY.  Only 300 raffle tickets will be sold.   All proceeds from this raffle will be shared equally between the winner of each prize and the Postpartum Resource Center of New York, Inc.  Click here for more info. 

All proceeds will go towards supporting the important services the Postpartum Resource Center of New York, Inc., a 501(c)3 non-profit organization (tax ID #11-3449880), provides to new mothers and their families.  To learn more about its services, go to:  http://postpartumny.org.

Traumatic Childbirth: The Ever-Widening Ripple Effect

Piggybacking off of my last blog post “Mother May I?” – An Important Documentary About Childbirth Trauma 2 days ago, I wanted to make folks aware about a childbirth-trauma-related event that I spotted on my Facebook feed today.

LMR Visioning Educational Series 2017

Sonia Murdoch, Jane Honikman, and me

The Lisa Mary Reilly Visioning Educational Series hosts an annual event in collaboration with the Postpartum Resource Center of New York.  Last year, I attended the event that took place in Manhattan and featured Jane Honikman, founder of Postpartum Support International.

This year’s event will be co-hosted by The Rochester Postpartum Wellness Coalition and will take place on Thursday, May 3, 2018, from 11:00 am-2:00 pm, at the Rochester Academy of Medicine, Rochester, NY.  The guest speaker of this event will be Cheryl Tatano Beck, DNSc, CNM, FAAN. She a Distinguished Professor at the University of Connecticut School of Nursing.  Dr. Beck serves on the editorial boards of 4 journals and has published over 150 scientific articles as well as 4 books.  The title of her presentation is Traumatic Childbirth: The Ever Widening Ripple Effect.   Click here to find out more about the event and to buy tickets, which are $50 each and includes lunch.

My wish is for every medical professional that treats mothers–from OB/GYN doctors and their staff to maternity ward staff, emergency room staff, midwives, doulas, and family doctors/general practitioners, as well as mental healthcare practitioners–were required to take this kind of training regardless of where they are located. This means this kind of training should be replicated and hosted in every major city in every state.  Until then, we are going to continue to have medical/mental healthcare professionals fail to realize the connection between traumatic childbirth and postpartum mood disorders.

We need to emphasize the importance of care for mothers just as much as people emphasize the importance of care for babies.  As I’ve said before, it just seems so obvious that, once a mother gives birth to a baby, all the attention goes to the baby and its care and the mother falls by the wayside.  Hello, she just carried a child for 9 months and had to give birth! Her body goes through extreme physical changes, including hormonal upheaval.   Any complications that occur during childbirth can increase the chance of a postpartum mood disorder to occur.  The ONLY view that matters on how a childbirth went should be is the new mother’s view on her childbirth experience.  If she feels like it was a God-awful experience, we need to respect, acknowledge and try to understand her feelings.  We should never pooh pooh her experience.  We should never assume her feelings are what you think they ought to be.  A new mother’s experience is her experience, period.

Let’s care more about how a mother views her childbirth experiences.
Let’s care about the kind of care she receives during childbirth.
Let’s care about how she envisions her childbirth to go.
Let’s care about how she feels about breastfeeding.
Let’s care about how anxious she feels about taking care of the baby.
Let’s care about her enough that when she seems to not be herself, we get her the help she needs.
Let’s care enough to realize that about 20% of new mothers experience a postpartum mood disorder that usually starts within the first 4-6 weeks postpartum but can happen up to a year and may be triggered by weaning.
Let’s care about her feelings, bottom line.

 

 

 

“Mother May I?” – An Important Documentary About Childbirth Trauma

A couple of days ago, a link to the Kickstarter project for the documentary “Mother May I” popped up on my Facebook feed, and it instantly caught my eye (and yes, I am one of the many backers and sincerely hope they meet their financial goal in 30 days, so please consider backing too….even $10 would help!).  Why did it catch my eye?  Because I had a traumatic childbirth experience that was the beginning of an agonizing postpartum depression (PPD) journey.  I didn’t have the awareness needed for me to advocate for myself.  There were no patient advocates anywhere along my PPD journey.  I didn’t have anyone to talk to about my experience.  I didn’t have a means of validating what I experienced.  I was in the dark.  I had to learn the hard way.  This is why I blog, why I wrote my book, and why I look for ways to help others and to try to get the word out and raise awareness so fewer mothers will be blindsided the way I was.

About one-third of new mothers describe their childbirth experiences as traumatic, but you hardly ever hear about negative experiences because everyone wants to be like “everyone else” and happily announce that “mother and baby are doing well.”  No one wants to admit to having a negative childbirth experience, just like no one wants to hear about a negative childbirth experience.  And that is why everyone thinks childbirth experiences aren’t that big a deal. I had previously blogged about negative childbirth experiences via my blog post titled “Forget the Myths, Here are the Realities of Pregnancy, Childbirth and Postpartum Experiences.” It was one of my first blog posts.   The difference between my traumatic childbirth experience and the ones that are the focus of this film is that the ones in the film, like the one experienced by Caroline Malatesta, involve obstetric assault that resulted in both physical and emotional harm to the mother.  That is much, much worse than what I experienced.

What has been completed thus far is 20 hours of footage of interviews of more than 15 experts (including a birth doula, a labor & delivery nurse and psychologist who specializes in posttraumatic stress disorder (PTSD) and survivors of birth trauma.  My plan is to reach out to the Birth Monopoly Foundation folks behind this documentary–including Caroline Malatesta, President, whose own birth trauma story is the impetus behind and featured in this film–and make sure they include the connection between negative childbirth experiences and maternal mental health disorders like PPD.

If you’ve been following my blog for some time, you know that passion for public awareness is one of my focal points.  I am particularly excited to see that funds from the Kickstarter project will help fund online campaigns to provide free information about birth trauma, resources, and legal rights. It will also help fund college outreach initiatives to help get the film (plus guided discussion) into 1,000 college classrooms around the country.  I believe there is no better time to present such information to teens than in colleges.   Colleges are a great way to reach numerous young people at once.  Speaking of which, I had envisioned doing a book reading of my book at my alma mater when it first came out, but I didn’t get very far.  My school is an all-women’s school and what better place to reach so many women at once about PPD!  But my idea didn’t get much interest.  Perhaps I wasn’t reaching out to the right people.   Perhaps I will try again there….and in other colleges as well.

To follow Birth Monopoly on Facebook: http://www.facebook.com/birthmonopoly 

 

Playing Monopoly with God – New York City Performances!

I am super excited to share the news that “Playing Monopoly With God” is coming to New York City! (Unfortunately, I won’t be able to make it due to prior commitments).

“Playing Monopoly With God” is an amazing, one-woman play.  Melissa Bangs is the talented and passionate actress behind this play.

Her mission is to share her experience and in so doing, spread awareness on what it’s like to be one of the 20% of new mothers who suffer from postpartum mood disorders and encourage mothers to share their experiences.

Melissa has been touring for 4 years putting on 37 shows—including sold-out shows in Seattle and Los Angeles– reaching nearly 5000 people

♦♦♦♦♦♦♦♦♦♦♦♦♦

Postpartum Support International presents:

Playing Monopoly with God & Other True Stories
Hilarious. Heart-wrenching. Human. 
A true tale of childbirth, madness and the journey home.
LIVE. NONFICTION. STORYTELLING. PERFORMANCE.
 
TICKETS ON SALE NOW!!! MAY 17th – 20th

Evening
 Performances – 6PM Doors – 7PM Performance
THE RATTLESTICK THEATRE @ 224 Waverly Place, New York, New York
Thursday, May 17th – Live Performance followed by a PSI Gala Event at Bobo NYC ($175)
Friday, May 18th – Live Performance w Wine, Cheese and Panel Discussion ($75)
Saturday, May 19th – Live Performance (also to be webcast) ($45 in-person)
and a Mimosa Matinee…
Sunday, May 20th – 1PM Doors/2PM Show ($45)
 
In September 2012, at 40 years old, Melissa Bangs gave birth to her beautiful daughter Adelaide.  A month later, dramatically hormone depleted and sleep deprived, Melissa is admitted to the Providence Psychiatric Facilities in a complete manic state.  After nearly a month, she is sent home with a bipolar diagnosis and on lithium.  What comes next is an extraordinary journey.
 
On her path back to wholeness, one of the things Bangs did was read her entire 100 plus page hospital record.  Somewhere, around page 87, there is a nurse’s note that looks as if it were scribbled late at night after a long shift.  It reads, “Patient says she will do comedy on this experience.”  Upon reading this, Bangs laughed out loud.  
 
The psych team couldn’t have possibly known that Bangs has been a storyteller her entire life and did comedy for a stint, as a student, at the Upright Citizens’ Brigade in New York City.  They couldn’t have known that transforming details from the most painful experience of her life into a room full of laughter would prove healing for so many.
 

Join Postpartum Support International for an evening of storytelling full of bewilderment, chaos and hilarity.  Bangs has a knack for telling true stories that cut to the bone of our shared, vulnerable human condition. Her true gift, however, comes in the moments in which she’s able to strip away the shame or agony of an experience and transform the room into an uproar of laughter.