If Only I Had Known – Part II

Today, I decided to continue with the “If Only I Had Known” theme from my first post 5-1/2 years ago in which I had blogged about a prior abdominal procedure to remove a dermoid cyst as a likely cause of infertility due to scar tissue formation.  What prompted me to write another If Only I Had Known post is an article on my feed a couple of days ago.  I’m writing about the same darn dermoid cyst removal procedure and scar tissue formation, but this time as the likely cause of the placenta accreta that ended up setting the stage for the postpartum depression (PPD) that hit me from left field 6 weeks after my daughter was born.  Earlier on in my blogging days, I had shared my less-than-perfect childbirth experience– the “Childbirth Complications” part of the trifecta of conditions in the subtitle of my book “One Mom’s Journey to Motherhood”–that led to the PPD rearing its ugly head.  In that blog post, I shared what happened after the perfectly normal vaginal delivery.

The title of the NPR article that I stumbled across a couple days ago titled “If You Hemorrhage, Don’t Clean Up: Advice from Mothers Who Almost Died” is, needless to say, very attention-grabbing.  The article, written by Adriana Gallardo and Nina Martin of ProPublica and Renee Montagne of NPR, starts off with the life-threatening situation that occurred to Marie McCausland after she gave birth.  The article then shares the advice of other survivors of traumatic and life-threatening childbirth experiences in several categories: choosing a provider, preparing for an emergency, getting your provider to listen, paying attention to your symptoms, after the delivery, and grappling with the emotional fallout.  This is why I love the article so much.  Although it contains frightening scenarios of possible complications that can occur during childbirth, it was written not to scare folks already anxious about having babies but to provide advice.  After all, KNOWLEDGE IS POWER.  Every mother should read it because if, God forbid, a complication does occur, she’ll be prepared.  As they say, hope for the best BUT EXPECT THE WORST.  This is not pessimism.  It’s reality.  In reality, complications can and do happen.  And we cannot and should not rely solely on our healthcare providers.  If you read the NPR article in its entirety, you’ll see how healthcare providers repeatedly fail their patients.

I absolutely love these types of KNOWLEDGE IS POWER articles!  Chapter 3 in my book is titled “Knowledge is Power” and is broken up into “What to know and do before the baby arrives” and “What to know and do if PPD hits.”  The sole purpose of my book was to raise awareness so others would not go down that dark, lonely, hopeless road I traveled after having a baby.  There is so much covered in my book, that I laughingly refer to my book as “an encyclopedia” purely due to the girth (i.e., 429 pgs)….yes, I had a lot to say!  In fact, that’s how I referred to it when I posted to my Facebook page a pic of my books on the Postpartum Support International table at their annual conference I attended a few weeks ago in Philadelphia.   Following is an outline of how I wanted my book to educate readers.

Chapter 1: The Statistics: A Wake-up Call

Chapter 2: Sharing My PPD Experience

  • Insomnia Sets In
  • Next Came the Panic Attacks
  • The Dark Abyss

Chapter 3: Knowledge Is Power

  • What to Know and Do Before the Baby Arrives
  • What to Know and Do if PPD Hits

Chapter 4: Environment vs. Heredity, Nature vs. Nurture

  • Role of Genetics/Nature
  • Role of Environment/Nurture
  • Role of Reproductive Events
  • My Story: Environmental and Genetic Factors Wreaking Havoc on My Life
  • What You Can Do to Make a Difference for the Next Generation

Chapter 5: Know Your Risk: Risk Factors

  • Biological Factors
  • Psychological Factors
  • Social Factors
  • Infertility
  • Coming Up With a Prevention Plan

Chapter 6:  My Postpartum Period – Exhausting, Anxious, Uncertain

  • Interrupted Sleep/Sleep Deprivation
  • Startle/Moro Reflex
  • Colic
  • Nasty Eczema and Cradle Cap
  • My Hair Loss
  • Returning to Work

Chapter 7: Ignorance and Stigma: Barriers to Progress

  • The Stigma of PPD
  • Silo Approach to Health Care and Ignorance among Medical Community

Chapter 8: Those Darned Myths

  • Myth #1: Pregnancy Is Always a Smooth, Easy and Blissful Experience
  • Myth #2: Baby Blues Is the Same Thing As PPD
  • Myth #3: PPD Is a Make-Believe Illness
  • Myth #4: Loving Your Baby Means Never Taking a Break
  • Myth #5: Motherhood Is Instinctive and Can Be Handled Solo: The Supermom Myth
  • Myth #6: All Mothers Fall Instantly in Love with and Bond with Their Babies
  • Myth #7: Breast-feeding Is Instinctive

Chapter 9: Trend Away from Social Support

  • First Few Days at Home … Now What?
  • New Moms Need Nurturing Too
  • What Is Social Support?
  • Support of Husband
  • Other Sources of Support (in the U.S.)
  • Postpartum Practices in Other Cultures
  • Tips for Establishing a Support Network

 Chapter 10: Postpartum Depression 101

  • Defining Postpartum Depression
  • PPD Symptoms
  • Insomnia
  • The Spectrum of Perinatal Mood Disorders
  • Reproductive Hormones and Mood
  • The Brain, Neurotransmitters and Stress

Chapter 11: PPD Impacts the Whole Family

  • Effect of PPD on the Baby
  • Effect of PPD on the Dad/Husband

Chapter 12: Passing on Lessons Learned

  • Tips for the Dad/Husband
  • Tips for the Mom Regarding the Dad/Husband
  • Tips for Friends and Family

Chapter 13: Steps to Recovery and Wellness

  • Health-Care Practitioners
  • Treatment Options

Well, like I said, the goal of the book was to help others, but who wants to read an encyclopedia nowadays when you’ve got the Internet, lol…..guess you can say it’s the thought that counts.  Hopefully, folks are finding my posts because the intent of this blog post, as with all my other blog posts and my book, is to try to educate women and their loved ones (and even health professionals too) so they can know enough to advocate for themselves, much like the intent of the NPR article.   I am not doing this for me.  I’ve already survived PPD.  I’m doing it for those who do have access to the Internet, find my blog and read my posts to learn how to prevent/survive PPD.

Jumping back to the NPR article…..
It’s a link in the post that led me to a Wall Street Journal article titled “The Quest to Untangle Why Pregnancy Can Turn Deadly,” written by Daniela Hernandez about Kristin Terlezzi’s experience with placenta accreta.  This article contains the most info on the topic I’ve seen in all my years of blogging (since 2009). Kristin Terlezzi recently, along with Alisha Keller Berry and Jill Arnold (two other survivors of placenta accreta), established the National Accreta Foundation  in April 2017 to work towards reducing the incidences of placenta accreta by partnering with other federal, state and local organizations.

Another link in the article led to the ProPublica article “Do You Know Someone Who Died or Nearly Died in Childbirth? Help Us Investigate Maternal Health” published on February 10, 2017 by Adriana Gallardo and Nina Martin, which asks for those who know someone who died or nearly died in pregnancy, childbirth, or within a year after delivery to share their stories.  The hope is that this information can be used to help researchers come up with ways to reduce the occurrence of and deaths from placenta accreta.

The only problem with these articles on NPR and other similar media is that they are only accessible to those who read such articles in the first place.  As I’ve realized in these past few months since T took over as President and split the nation into two factions, there is a whole T-supporting, alternative facts supporting faction claiming everything but Breitbart, Fox News and now Trump TV as #fakenews.  So, how is this information going to reach everyone?  It’s not like these misogynistic media are going to share scientific articles dedicated to improving the experience of mothers, because all these media only care about is the fetus, the health/well-being of the mother be damned….but then again, I digress.  But I won’t apologize for raising this critical point.  It’s definitely food for thought as to how we can get this information to EVERYONE.

 

If Only I Had Known…..

So, if you haven’t noticed, I’ve been somewhat absent from the blogging scene…it’s been 3 weeks since my last post, the longest break from blogging I’ve taken in a long time. I have to admit I’ve been dry on ideas lately, not to mention the fact that I’m finding it tough to be back on the Twitter scene AND keeping up with my blog AND working full-time AND all the other stuff that needs to be done like spending time with my daughter, helping her with daily homework, etc.

I finally came across a tweet today from Mindy Berkson (@infertilityhope on Twitter) that said:

Did you know that adhesions can lead to #infertility or increase the chance of an ectopic #pregnancy? goo.gl/PmDdA

This tweet IMMEDIATELY grabbed my attention.  Why? Well, as some of you already know, I had had a dermoid cyst that was growing on one of my ovaries removed back in 2001, I had an ectopic pregnancy less than 2 years later, and I had to undergo two IVF cycles.

The link takes you to an article posted on the Resolve website, a great resource for those who are struggling with infertility.  Titled “Pelvic Adhesions: Impact on Your Fertility,” the article provides an overview of what adhesions are, what causes them, how they can be removed, as well as a reminder to stay well informed by asking questions prior to surgery, like whether the doctor will be employing such procedures as microsurgery or adhesion barriers to minimize the risk of adhesion formation.

Adhesions are basically scar tissue that typically forms as a result of surgical procedures. Pelvic adhesions is scar tissue that typically develops after pelvic surgery (to remove fibroids in the uterus, cysts on the ovary, ectopic pregnancies in the fallopian tube, or endometriosis).

Had I known all this (and that there were procedures that could minimize risk of adhesions), you bet I would’ve requested my OB/GYN employ one of the procedures to minimize the risk of adhesion formation, which may have or may not have led to IVF.  Or I may not even have gone through with the dermoid cyst removal altogether.  I will never know which was the lesser of two evils–leaving the dermoid cyst on the ovary or the adhesions from removing the dermoid cyst. I will never know whether leaving the dermoid cyst on the ovary would’ve led to infertility. I will never know whether adhesions from the surgery led to my infertility. I will never know whether I was inherently infertile at that point in my life–with or without the dermoid cyst, with or without the surgery.

I just know that I did have a helluva journey to motherhood, one that was paved with infertility issues, childbirth complications, and postpartum depression–and hence the title of my book.  But let me tell you….I came out of it much stronger and smarter than before!  And now I am going to do as much as I can to bring awareness to others.  The awareness I never had and which could’ve made a huge difference for me.