Two Important PPD Studies

Since my last blog post, I thankfully haven’t been insane with work as I’d been in earlier weeks.  Truthfully, I’ve just been lazy.  It’s like my body is finally letting me be relaxed and not doing much, for once in who knows how long that I’ve honestly lost track.  I am still in the process of transitioning off of the laptop I’ve had for over 8 years, and with this blog post will be closer to my goal, since it will leave me with only 5 more tabs left open to blog about.  My last blog post included 4 stories of moms who died from severe cases of postpartum depression (PPD).  This blog post is about 2 PPD studies.

BREXANALONE / SAGE-547

This past June, I was beyond excited in reading an announcement from the UNC Health Care and UNC School of Medicine Newsroom titled “UNC researchers lead clinical trial evaluating potential treatment for postpartum depression” about a new treatment for PPD called brexanolone (or SAGE-547) currently in clinical trial phase 3.  The results of the clinical trials have been extremely promising thus far, with SAGE-547 providing a fairly rapid onset of relief for the participants, but it still needs to undergo further tests before the FDA would approve it for use by new moms….and how AMAZING would that be!  It would make a huge difference in the lives of so many mothers and their families–with 1 in 7 new moms experiencing PPD–not to mention save lives!

Brexanalone is also known as allopregnanolone, which is a steroid in the brain (neurosteroid) derived from progesterone that helps to regulate mood.  There is an increase before and a sudden decrease after childbirth when it comes to both allopregnanolone and progesterone, and it’s the sudden drop that seems to trigger PPD for some women. There are currently no medications specifically intended to treat PPD. Antidepressants like Paxil, which are supposed to increase levels of the neurotransmitter serotonin, can take several weeks to “kick in” (it took 4 weeks for me), if at all.  For some moms suffering from PPD, multiple antidepressants fail to do anything.  And if you’ve ever been through depression you know how a day spent depressed can feel like an eternity, so can you imagine what weeks, or even months, spent desperate for a relief from symptoms, while caring for a new baby, must be like?

On July 14th, I heard Samantha Meltzer-Brody, M.D., M.P.H., director of the Perinatal Psychiatry Program at the UNC School of Medicine, talk in person about the treatment and the study at the annual Postpartum Support International conference in Philadelphia.

You can participate in testing via the Hummingbird Study. The website includes information on how to find out if you can participate.  On the website, there is also a helpful guide on how to to identify the warning signs of PPD of and provide support to a new mom with PPD.

PPD ACT

In order to better understand why some women suffer from PPD or postpartum psychosis and some do not, what causes PPD, as well as how to detect, treat and even prevent PPD and postpartum psychosis, information from as many women as possible needs to be collected for analysis.  To help collect data from as many participants as possible, an app was created. Thank goodness for technology!

Last year, Dr. Samantha Meltzer-Brody–yes, her again–was part of a team (that included the National Institute of Mental Health, UNC Chapel Hill and Apple) to create the PPD ACT iOS app, which I’d previously blogged about. It is an app that is is free and available to download via iPhone (and now Android phone!) in English and in Spanish in Australia, Canada, and the United States, and is coming soon to the UK and to Denmark.  Any mom who suspects she has experienced symptoms of PPD or postpartum psychosis is encouraged to download the app and join the study.  Even if you think/know you had PPD, you can participate in order to help advance the study to benefit moms in the future.  It only takes 10 minutes of your time.  I just did it myself, and it took less than 10 minutes, including the time to download the app to my iPhone.  Part 1 of the app is a short survey to get feedback on whether you have/had PPD and receive mental health resources if you are currently experiencing PPD. Part 2 involves participation by those who have/had PPD in a DNA study using a spit kit.

Click here for access to articles in the New York Times, Buzzfeed, CNN, Huffington Post, and the Lancet on PPD ACT.

Advertisements

Wake-up call for new moms who feel “off” for days after childbirth (and family members of these moms)

I’m finally blogging again after a slight reprieve from being unbelievably busy for weeks with work and then vacation and then feverishly cleaning my house for guests coming over (if I had more time to clean regularly cleaning wouldn’t be such a big deal).  Also, I am in the process of slowly transitioning off of the laptop I’ve had for over 8 years, so every single tab I’ve had open (which is a lot) need to be closed, obviously.  These tabs have been open for months for me to blog about and/or read but just haven’t had the time to do.  So, here I am trying to get through as many articles as possible.

Many of the tabs had stories about moms who died from severe postpartum depression (PPD), so I decided to blog about the deaths of FOUR moms who suffered from severe postpartum depression (PPD).  These are just four of the deaths from a postpartum mood disorder that have occurred since 2016.  There have been others, but these are the only ones other than the D’Achilles story (which I mentioned back in May) that I have come across in my daily news feeds because loved ones of these women have spoken up  and shared their stories so that others would not suffer such experiences.

In a Good Housekeeping article published on May 19, 2017 by Andrea Stanley titled “The Voice That Said ‘I’m a Bad Mom’ Killed My Wife,” Greg Ludlam opens up about the severe postpartum depression that took the life of his wife Elizabeth on June 1, 2016.  When their second child was around one year old, something about Elizabeth seemed off.  She wasn’t herself.  Little things set her off.  She withdrew from friends and neighbors.  She started saying and believing she was a bad mom.  There was no longer any joy or enthusiasm in things that used to make her happy. She got angry over things at work when she was never previously that way.  These are all trademark symptoms of PPD but Greg had no idea that his wife was suffering from it.  He has had to cope with the guilt of not picking up on what was going on and getting professional help.

Greg Ludlam urges the significant others of new mothers to do the following:

“….[If] you see something not right with your wife or partner, you need to get help right away from a medical professional who specializes in mental health care.  I’m not talking about tomorrow or next week — now.”

He also urges new moms to do the following:

“For anyone who is reading this and you’re feeling overwhelmed or you’re feeling like a bad mom or you’re feeling like a lousy wife, or just feeling unloved and alone — you’re not. You’re not a bad mom. You’re not a lousy wife. You’re not unloved and alone. There’s help. You need to reach out to a qualified mental health doctor right now.”

In a CTV News article published on January 18, 2017 titled “B.C. widower urges moms suffering postpartum depression: ‘Please seek help ‘” Kim Chen opens up about the severe PPD that took the life of his wife, Florence Leung shortly after she gave birth to their son in October 2016.   She had gone missing shortly after giving birth to her son and her body was pulled from the water near an island close to Vancouver, British Columbia.  Florence was being treated for PPD before her disappearance.  Chen urges new moms who feel anxious and/or experiencing low mood to seek help and share their feelings.  He mentions there is a too much pressure and too many misconceptions regarding breastfeeding, as the hospital where they delivered the baby had Breast is Best materials that reiterated over & over how breast milk should be the only food for babies for the first six months.  He realizes the benefits of breast milk but at the same time believes formula is totally fine as either a supplement or replacement for breast milk.  It should be a personal choice and dependent on circumstances.

Chen wants new mothers to know:

“Do not EVER feel bad or guilty about not being able to “exclusively breastfeed”, even though you may feel the pressure to do so based on posters in maternity wards, brochures in prenatal classes, and teachings at breastfeeding classes.”

In a Her View from Home article published in September 2016 titled “New Mom Takes Her Own Life After Silent Battle With Postpartum Depression: Why All of Us Must Share Her Friend’s Plea,” author Julie Anne Waterfield  opens up about the severe PPD that took the life of her friend Allison on June 28, 2016.  Allison leaves behind her husband and daughter.  Julie wants people to know that there is nothing shameful about PPD.  The transition to being a mother can be very difficult and it is important to get help from your husband/partner, friends, relatives (and if you’re not feeling yourself, seek help from a counselor and/or support group).  The road to motherhood is not always smooth or peachy.  For some new mothers (like me), the road is very difficult–not to mention lonely and for first-time moms uncertain, guilt-ridden and downright scary.  For these mothers, not having a birth and postpartum experience as they envisioned it *should* be makes them feel ashamed.

Julie wants new mothers to know:

“To all those mothers out there experiencing some of these same feelings: you are not alone, and you are not a bad mother!  PPD is lying to you.  It is twisting your memories, feelings, and beliefs and reshaping them into an overwhelming falsehood.  You will not be judged, only loved, as you seek help.  To those breast-feeding mothers taking Reglan (metoclopramide) to increase milk supply: stop and do research. Reglan has detrimental side effects such as new or worsening depression, suicidal ideation and suicide.  Supplement with formula if needed.  Your baby will be just as perfect and healthy with or without the breast milk.  Having more breast milk is not worth sacrificing your mental health or possibly your life.”

And finally in a The Hour article published by Kaitlyn Krasselt on September 8, 2017 titled “Norwalk sisters raising awareness about postpartum depression, suicide,” the sisters of Kara Kovlakas open up about the severe PPD that took Kara’s life (one day before she was to turn 33) on October 13, 2016, nine months after giving birth to her 2nd child.  Kara’s family created the Light for Kara website in her memory and to help raise awareness about postpartum mood disorders.  Kara had suffered from depression and anxiety before she had children.  Within 7 months after giving birth, her thoughts started to become jumbled and she couldn’t think clearly. She had doubts that she was a good parent.  A dark cloud followed her everywhere. She couldn’t see the positives, only the negatives each day. She had been seeking outpatient treatment for her depression and anxiety, and kept insisting to her family that she was getting better.  From the outside, she looked fine to everyone.  But taking her own life was something that her family and friends never expected.

Kara’s sister, Lauren Shrage, wants people to know:

“This is a real mental illness. The shame new moms feel about needing to reach out for help is real. As a new mom, you’re expected to have it all together. We’re all new moms too and the only thing anyone ever mentioned to me about postpartum depression was a pamphlet in the folder I took home from the hospital. That’s not enough.”

Please take these experiences to heart. Share them with others. We need to de-stigmatize PPD by being open about it and avoid being judgmental. Remember that not all postpartum experiences are peachy, and that one in seven new mothers experience a postpartum mood disorder. Let’s keep a close eye on the new moms in our lives.  Offer them help, not criticism. Don’t help push a new mom over the edge with Breast is Best or other one-size-fits-all tactics.  ONE SIZE DOES NOT FIT ALL.  Everyone is different.  Everyone’s childbirth and postpartum experiences are different. We want mothers AND babies to thrive, not die.

If you or a loved one doesn’t seem to be herself for days after childbirth, reach out and ask her to share about her postpartum experience with you and/or a health practitioner.  Getting help can mean life or death, as you can see from this blog post.  Postpartum Support International has a warmline (800-944-4773) and a listing of local resources to help with finding local help.  Reach out to me by leaving a comment below and I can respond via email.

Did you know that you can text 741741 when you are feeling really depressed or suicidal? A crisis worker will text you.  It’s a free service by The Crisis Text Hotline! (Only in the US).  Texting has proven to be a more preferred way of reaching out for and getting help.

The National Suicide Prevention Hotline is available 24/7. If you or a loved one needs help right now, call 1-800-273-8255.  It’s confidential and provides a network of over 140 crisis centers nationwide.    You can also visit www.suicidepreventionlifeline.org.

Why is it still so damn hard for moms to find help for postpartum mood disorders?

We are in the 21st century.  It is now 2017.  We have someone leading the country and the GOPs in trying to make it even harder for people to get access to healthcare, and in particular, mental healthcare.  Check out the articles “How Trumpcare Will Affect Moms Fighting Postpartum Depression” and Psychology Today’s “How Trumpcare Will Affect Mental Health Care.”  But we mustn’t let such ignorant, selfish and typically capitalist initiatives impede progress.  We must never stop resisting any initiative to make conditions worse, to stop forward momentum!

It is 2017 and I am asking the question so many of the other attendees of last week’s Postpartum Support International (PSI) conference are asking: Why is it still so damn hard for moms to find help to treat their postpartum mood disorders, like postpartum depression (PPD), postpartum psychosis (PPP) and postpartum OCD?  A common theme across the training sessions offered at the PSI conference, and a common topic of my blog, is the fact that there are mothers seeking help across the country daily, and we may have names of therapists or social workers, but in many cases, these professionals aren’t anywhere near where the mothers are located.  Or there’s the issue of affordability.  Or when the professionals can see a new patient (could be weeks).  Or how about there just aren’t enough professionals who can see new mothers suffering from postpartum mood disorders, period.

A recent article by Crystal Edler Schiller, PhD, assistant professor in the Center for Women’s Mood Disorders and Department of Psychiatry at the University of North Carolina at Chapel Hill, titled “Maternity mental health care should be accessible” highlights the issues.

Although the numbers of professionals is increasing slowly over time, there is just not enough of them to treat the actual numbers of mothers needing care.  Many PSI members are social workers, registered nurses, peer group supporters, psychologists and psychiatrists, which is great.  But the numbers of people in these roles throughout the country fall pitifully short of the help that’s actually needed.   So many mothers suffer in silence, and you only really hear about the ones who openly discuss their experiences via social media (like me) or other articles or in the news.  Or you hear about the mothers in the news who weren’t able to get the right help and their illnesses led to their deaths and/or death of their babies.

I’m fortunate that I’m in New Jersey, a state that mandates screening for PPD and has a state initiative called “Speak Up When You’re Down.”  We also have The Perinatal Mood and Anxiety Disorder Center at Monmouth Medical Center, the very first center dedicated to maternal mental healthcare in the state, which I blogged about previously.  A group of PSI members in New Jersey have come together to form a PSI-New Jersey chapter.  These members meet monthly and we discuss the support they provide mothers via their own practices and/or via the Partnership for Maternal & Child Health of Northern New Jersey, Central Jersey Family Health Consortium, and the Southern New Jersey Perinatal Cooperative. My own experience with PPD pre-dates all of these initiatives, and needless to say, there was a whole lot more ignorance back in 2005.  It’s truly satisfying to see these initiatives take root, with more in the works.  However, this is just New Jersey and as far as I’m aware, only California, Massachusetts and Illinois have similar screening and care initiatives in place and/or in development.  There are 47 other states who are extremely behind when it comes to maternal mental healthcare.

The slow change I’ve seen just in New Jersey alone over the past 12 years since I suffered from PPD is unacceptable.  You would think that all therapists know how to diagnose and treat mothers suffering from a postpartum mood disorder.  Unfortunately, they don’t.

How do we speed up progress?  We need funding to make the printing of pamphlets/flyers available in ALL doctor’s offices that could potentially see new mothers (i.e., OB/GYNs, family doctors, general practitioners, pediatricians).  Medical schools must mandate that all training programs for all healthcare professionals (i.e., doctors, nurses, social workers, therapists) include a minimum of a semester in maternal mental health conditions and are led by PSI educators, and without these programs people cannot obtain their degrees/licenses.  Unless we start putting these measures in place, we are not going to see any significant improvement in addressing the scores of mothers needing help in our lifetime.

I’m going to leave you with the last sentences of Dr. Schiller’s article, which makes the common sense statement that, thanks to ignorance due to stigma, is all too often taken for granted by all too many people, healthcare professionals included:

Let’s dispense with the outdated idea that the body and mind are separate, which is at the foundation of decisions to pay for physical but not mental health care. Mental health is physical health, and our bodies and our babies are only as healthy as our minds.

 

 

 

Wrapping up Maternal Mental Health Awareness Month: Interview with Lindsay Lipton Gerszt on the Documentary “When the Bough Breaks”

Introduction:

When the Bough Breaks follows the journey to recovery for Lindsay Lipton Gerszt.  It also includes interviews of celebrity mothers (i.e., co-producer Tanya Newbould, Carnie Wilson of Wilson Phillips, celebrity chef Aarti Sequeira, Peggy Tanous of The Real Housewives of Orange County), interviews with other mothers, subject matter expects on postpartum mood disorders (like Diana Lynn Barnes, whom I know), and those who helped Lindsay during her recovery (including her doula, her therapist, her acupuncturist, her OB/GYN).

The film is educational in that it touches on the statistics of postpartum mood disorders and what they are, importance of social support, risk factors, importance of screening new mothers, treatment methods, and the stigma/shame surrounding such disorders…..fundamentally, the same elements that are covered in my book.

The film encourages mothers to speak up and share their experiences, and seek help as soon as they feel something isn’t right.  There should be no shame in being sick with a postpartum mood disorder.  It is not your fault.  It is your body’s physical reaction to your childbirth experience.  The more mothers share their experiences, the less stigma there will be.

I smiled when I saw my lovely friends, Jane Honikman, founder of Postpartum Support International and Postpartum Education for Parents (PEP) and Walker Karraa.  Tears flowed when I listened to the tragic stories, one of which I had blogged about previously (Naomi Knoles). One of my favorite lines from the film referred to PPD as a “sickness of the brain, which is an organ of the body.”  If the public and healthcare folks all treated PPD this way, we would be leaps and bounds ahead of where we are today.  My hope is that one day, the diagnosing and treating of PPD will be as routine as diabetes.  The film ends very much like how my book ends.  There is hope, as there is progress thanks to efforts of many of the folks mentioned in the film.

I know what it’s like to be impassioned to share your experience so that other mothers don’t feel as alone, hopeless and caught off guard as you do.  My 429-page book has no doubt scared a lot of people away from buying and reading it, and I haven’t done a whole lot to market it.  But at least I have my blog, which reaches people via Internet all over the world.  For many people, images and movies have a greater impact.  You just sit back and take it all in.  Now that it’s available on Netflix, the film is available among all the other movies that could potentially be seen by the 94 million subscribers, which is a really huge deal.  And with Brooke, Carnie, Aarti and Peggy’s names attached, the film will surely draw in many, and hopefully, many more people will now have an awareness of postpartum mood disorders and as a result, more mothers with PPD will recognize when it’s not the blues and seek help sooner.  And hopefully, the film will help decrease the stigma associated with maternal mental health conditions like PPD, postpartum psychosis, postpartum OCD, etc.

~~~~~~~~~~~~~~~

Lindsay, I’m sure you have heard repeatedly about how wonderful this film is.  It is ground breaking.  It is educational.  It is chock full of information that is so important to share with the public.  Thank you for taking the time to participate in this Q&A on my blog!

Question 1:

When did the idea of filming your experience with PPD first come up? Was there a light bulb moment for you?  What was the pivotal moment that turned your desire to write your story into reality?  For me, there was a specific what I refer to as “light bulb moment.”  Tom Cruise’s words “There’s no such thing as a chemical imbalance” in 2005 was my light bulb moment to write a book about my PPD experience. Incidentally, seeing him included in When the Bough Breaks flashed me back to how I felt when he uttered those infamous words. It was my experience with PPD, combined with childcare complications and lack of social and practical support, that motivated me to write my book One Mom’s Journey to Motherhood.  My mission was to help other mothers realize they were not alone in what they were experiencing and not the only ones seeking practical tips in dealing with childcare complications (e.g., colic, eczema, cradle cap, which I had no idea how to address as a first-time parent), so new moms wouldn’t be as anxious and in the dark as I was on how to cope with these types of issues.

Answer 1:

Director and Producer, Jamielyn Lippman, and Producer, Tanya Newbould, had the idea to make a documentary about PPD.  They put an ad in a mommy blog and I responded, as I felt ready to share my story.  At the time, my son was only a few years old and I was still suffering greatly.  After my interview, Jamielyn reached out to meet with me.  We decided to continue the journey of making When the Bough Breaks with the three of us, and I came on as a producer.

We knew that, in order for this film to really resonate with the audience, we needed to follow someone on her journey.  We needed someone that people could root for and connect with.  When we first started talking about who we wanted this person to be we didn’t have to think further than myself.  I craved to feel better and I realized that I was so far from recovery.  It was also the perfect opportunity for me to seek out different treatment options and to further educate myself on perinatal mood disorders.

What I did not know at the time was how big of an impact making this film would have on me.  The emotions I felt while filming were real, raw and intense.  I had anticipated to “hurt” while sharing my journey but what I experienced through filming was life changing.

 

Question 2:

Can you give a brief overview of what the film is about ?

Answer 2:

When the Bough Breaks is a feature-length documentary about PPD and postpartum psychosis.  Narrated and executive produced by Brooke Shields, this shocking film uncovers this very public health issue that affects one in five new mothers after childbirth.  The film follows Lindsay Gerszt, a mother who has been suffering from PPD, for six years. Lindsay agrees to let the cameras document her and give us an in-depth look at her path to recovery. We meet women who have committed infanticide and families who have lost loved ones to suicide.  Babies are dying, women aren’t speaking out, and the signs are being missed.  When the Bough Breaks takes us on a journey to find answers and break the silence.

 

Question 3:

Is there anything in particular you’ve learned as a consequence of capturing your story and these other people’s stories on film?

Answer 3:

I have never learned more about myself, human nature, pain and love as I have with making When the Bough Breaks. I have always suffered from depression but to suffer while having to take care of a baby made me realize how strong I am and what I am capable of.  I also learned that you cannot judge anyone!  Everyone has a story to tell and we must learn from each story no matter how painful it is to listen.  As hard as it was to make this film, it was life changing and I would not take it back for anything in the world.

 

Question 4:

Who should watch the film, and why?

Answer 4:

When the Bough Breaks is not just a film for mental health professionals.  It is a film for everyone.  Since up to 1 in 5 new mothers will suffer from a perinatal mood disorder, everyone will know someone at some point who is suffering.  We need to know what signs to look out for and how to give the support that those whom are suffering so desperately need.  We need to know what treatment options there are and how those treatments work.  Most importantly, we need to keep talking about this very serious illness and fight the stigma that is attached to it.  With When the Bough Breaks being available in 64 countries, now we have a big opportunity to work with other advocates to keep this important conversation going and reach a huge audience that otherwise does not know anything about PPD.

 

Question 5:

What was the most challenging part in the process of filming this documentary?

Answer 5:

For me, filming the interviews that dealt with postpartum psychosis were the most challenging part of filming When the Bough Breaks.  As producers, you are there to tell a story.  However, when you meet and get to know the many people being interviewed in the film, you start to care for them on the deepest of levels because we are sharing this experience and journey together.  To see their pain in telling their stories–whether it was a mom who suffered from postpartum psychosis, her partner or the children who were affected by it–was very intense and heartbreaking for me.  I personally became very close to Naomi Knoles and her family.  When we lost her, we were devastated but it also made us work even harder to make sure the film reached as many people as possible so her story could be heard and help others.

 

Question 6:

Do you plan to screen this movie in major cities, and if so, is there a schedule?  Is there a plan to get OB/GYNs to watch this movie?

Answer 6:

We have just signed two educational deals that will help get the film out in markets to which we would not normally be able to reach out on our own.  We have also set up a screening license on our website so that organizations and communities can screen and share the film. We need the film to reach as many hospitals, OB/GYNs, pediatricians and any other organizations that work with new mothers, and I am and will continue to work hard to make sure that happens. The screening license can be found here https://www.whentheboughbreaksfilm.com .

 

The First Center of its Kind in New Jersey

As I mentioned a few days ago, I took the day off because  I needed to witness the grand opening of the very first center of its kind in my home state: The Perinatal Mood and Anxiety Disorder Center at Monmouth Medical Center.

 

 

 

 

 

After paying this center a visit personally and hearing about the immensely positive impact it has had the past 6 years since Lisa Tremayne first endeavored to provide a place for mothers suffering from postpartum depression (PPD) to go to for help, I am just so, so amazed and have such tremendous respect for Lisa and for the staff.

 

 

 

 

There were many mothers/babies there that were there to celebrate with Lisa and the amazing staff.

 

 

 

 

 

Robert Graebe, MD (Chairman of the OB/GYN Dept) kicked off the ceremony.

 

 

 

 

 

Followed by Mary Jo Codey who recounted her personal experience with PPD so long ago.  I’ve heard her speak what must be a dozen times by now, but hearing her wrenching experience from when she suffered from severe PPD in the 1980s and a second time in the 1990s always serves as a reminder of how far we’ve come and yet how much further we still need to go when it comes to helping new mothers realize when and how to get help, helping doctors correctly diagnose and treat PPD.  She wrapped up her speech with a statement about how grateful she is for the existence of this center and how we need to make sure more centers like this open up in New Jersey.  Click here  and here for articles posted earlier today that include pictures and video clips.

After the former First Lady’s speech came Lisa Tremayne who gave a brief history of the center and how it has been helping mothers since 2011 and then introduced PPD survivors Meg Santonacita, Luciana Mangyik, and Carolyn Stack, each of whom shared their experiences and how the center helped each of them to recover.

 

 

 

 

 

After the speeches came the ribbon cutting ceremony!

Maternal Mental Health Awareness Month – 2017

Just like this time last year, I’ve come across so many things on my Facebook feed in the past few days–all in anticipation of Maternal Mental Health Awareness Month– that I’m just going to highlight all the exciting work, developments, other mothers’ experiences, and upcoming events all in one post.  It’s just a shame that these exciting developments, including articles to boost awareness, don’t happen all year round!  Think about how much more progress there would be if that were to happen!

As I stumble across more articles this month, I will add them to this blog post.

 

House Bill 1764 in Illinois

I saw an exciting announcement today on my Facebook feed from my friend Dr. Susan Benjamin Feingold, a nationally renowned expert on perinatal (pregnancy and postpartum) disorders and the author of Happy Endings, New Beginnings: Navigating Postpartum Disorders.  She testified yesterday in the Illinois Senate Criminal Committee.  HB 1764 just passed the Senate Committee and must next pass the full Senate.  Once the Governor signs off on it, it becomes Illinois law, making Illinois the first state to pass such a law!  Such a law has existed in the UK since 1922 when the Infanticide Act was put in place to ensure mothers receive psychiatric treatment and rehabilitation, rather than a death sentence or life in prison. Canada and several other European countries have also adopted similar laws.  It’s about time the US did too!

It’s due in large part to the following individuals that HB 1764 has made it thus far:  Dr. Feingold and Lita Simanis, LCSW who provided critical testimony, Bill Ryan (retired Assistant Deputy Director at the Illinois Department of Family and Child Services who regularly visited the Lincoln Correctional Center in Logan County, IL and heard the stories of numerous women serving long or lifetime prison sentences for crimes committed while sick with a postpartum disorder) who proposed the law and brought it to State Representative Linda Chapa LaVia (83rd District) who sponsored it, and Barry Lewis (Chicago Criminal Defense Attorney) who provided a written brief and expert testimony as to why this law is constitutional (in response to opposition from the State Attorney).

Click here for more information about postpartum psychosis and why this news is of such significance and a major stepping stone to what will hopefully be the passing of similar legislation throughout the U.S.   Cases of postpartum psychosis are rare and cases of ones leading to infanticide are even rarer.  But as the article states, all cases of postpartum psychosis are neurochemically caused.  Usually, women who are sick with postpartum psychosis don’t even know that’s what was wrong with them and their conditions go untreated, undiagnosed or diagnosed but not properly treated.  During trial, these women are not allowed to talk about their conditions or have them considered as mitigating factors in sentencing.  Although the idea of infanticide is truly tragic and unfathomable, try donning your empathy hat and imagine what it would be like if it were you (be sure to read up on what postpartum psychosis is and what it does to a person first) that was being controlled by  neurochemistry gone completely out of whack until tragedy strikes with an act you commit–one that you could not prevent or control due to your illness–that you will pay for dearly for the rest of your life enduring painful, unrelenting regret, many years or life in jail (or even face the death sentence), and with your illness never addressed or treated.

 

PPD Screening in NYC and Texas:
On May 18th, First Lady of NYC, Chirlane McCray, announced that NYC Health + Hospitals will screen EVERY new mother for maternal depression.  NYC Health & Hospitals provides healthcare services to more than 1.4 million New Yorkers in more than 70 patient care locations and in their homes throughout New York City.  Click here for the link to her Facebook page announcement.  Click here for more about NYC Health & Hospitals.

On my Facebook feed on May 23rd, I saw a link to an article that made my eyes pop wide open!  How exciting was it for me to read that, over in Texas, House Bill 2466 was passed for new mothers participating in federally-backed health care programs (for low-income families) like Medicaid to be screened for PPD when they bring their babies to see their pediatricians.  Yes, mothers who bring their babies in for their checkups can get screened for PPD by their babies’ pediatricians, and the screening would be covered under their children’s plan, like the Children’s Health Insurance Program. Research has shown that PPD is less likely to be identified and treated among low-income mothers, and this bill seeks to detect PPD through newborn checkups.  The rationale is–which I’ve blogged about previously and even wrote about it in my book–since mothers are not required to see their OB/GYN after childbirth unless there’s a medical issue that needs treatment, there is the opportunity at their babies’ 1-month checkup for the pediatrician to screen the mother.

 

Alexis Joy D’Achille Center for Women’s Behavioral Health:
In my Facebook feed today, I spotted an article about a new center like The Perinatal Mood and Anxiety Disorder Center at Monmouth Medical Center, which celebrated its grand opening on May 5th.  Click here for my blog post about this first of a kind center in New Jersey.  Due to open this fall, the the Alexis Joy D’Achille Center for Women’s Behavioral Health will offer comprehensive maternal mental health care at West Penn Hospital in Bloomfield, PA, in partnership between Allegheny Health Network and the Alexis Joy D’Achille Foundation.  This new facility will offer a wide range of treatment, including weekly therapy, an intensive outpatient program and partial hospitalization for women with more severe forms of PPD.  The Alexis Joy D’Achille Foundation was founded by Steven D’Achille in memory of his late wife who at the age of 30 lost her battle against the severe PPD that hit her after she had her daughter in August 2013.  The article about this new center talks about the work it has done to benefit new mothers since 2015, and the work it plans to do once the facility is completed.

 

Personal Success Story: If You Only Ask – by Jordan Reid
Being your own advocate by being informed about postpartum mood disorders, knowing your risk, and being prepared for the possibility – unfortunately, you have to for self-preservation purposes because there aren’t enough resources to catch the moms who fall through the cracks of doctors failing to diagnose, treat or even refer maternal mood disorders. The post reflects the main steps I suggest in chapter 5 of my book, which delves into risk factors and coming up with a prevention plan.  I also touch on being prepared in a previous blog post by having a therapist lined up, just in case, if you think you are at high risk for postpartum depression (PPD).  I’ve also blogged about risk factors for PPD.

 

Postpartum Support International (PSI):
The annual PSI conference is coming up in Philadelphia!  Register by May 8th to take advantage of early bird rates for its PMD certificate course from 7/12-13, as well as for the regular 2-day conference from 7/14-15).

Additionally, PSI has just announced its partnership with the University of North Carolina-Chapel Hill (UNC-Chapel Hill) School of Medicine to expand the PPD ACT.  The PPD ACT is an iPhone app previously released in the U.S. and Australia to study PPD, which is now expanding its reach to iPhones in Canada and to Android phones in the U.S. and Australia.  The app was designed to help understand why some women suffer from PPD and others don’t, in the hope of improving the ability to minimize risk and find more effective treatments.  Women with the app can participate in surveys and DNA testing to study the genes of those suffering from PPD.  This study is the first of its kind.  Last year, approximately 14,000 women enrolled in the study.  Many women who participated were successfully treated for PPD. Ultimately, the hope is to be able to expand the study across the globe.  To download the app or learn more about the study or PPD, click here. For more information about the PPD ACT, click here to access the UNC-Chapel Hill announcemen, here for a HuffPost Canada post announcement, and here for a Mom.me post titled “Find Out If You Have Postpartum Depression Without Leaving Home” by Claudiya Martinez on May 15, 2017.

 

National Coalition of Maternal Mental Health (NCMMH):
And last and most definitely not least, please have a look at how you can participate in Maternal Mental Health Awareness Week (May 1-7) led by the National Coalition of Maternal Mental Health (NCMMH).  Click here to see how you can partner along with other organizations, blogs, authors, mental healthcare providers, etc. in the awareness initiative by becoming a social media partner (like me) to NCMMH.  Help spread the word about the #1 complication of childbirth on Facebook and Twitter by changing your profile pictures and cover pictures, as well as re-tweeeting/re-posting digital messages from the NCMMH’s Twitter and Facebook accounts from May 1-7.

 

The Perinatal Mood and Anxiety Disorder Center at Monmouth Medical Center – Grand Opening on May 4, 2017

Announcing the Grand Opening of The Perinatal Mood and Anxiety Disorder Center at Monmouth Medical Center (MMC)!  This is such an exciting development for New Jersey that I’m taking the day off from work to attend this grand opening to meet the program’s multi-disciplinary team of experts and clinicians certified by Postpartum Support International.

When:  Thursday, May 4 at 1:00 p.m. (ribbon cutting starts then)
Where:  Maysie Stroock Pavilion (Pavilion & Second Avenue, Long Branch)
RSVP:  Email teamlink@rwjbh.org or call 888.724.7123
Agenda:  Speakers will include Mary Jo Codey (former NJ First Lady who will share her personal experience with postpartum depression (PPD), Lisa Tremayne, Robert Graebe, MD (Chairman of the OB/GYN Dept), and several PPD survivors who are former patients of the center.

Thank you to Lisa Tremayne, RN, CPPD, CBC, CCE — maternal child health nurse at MMC — for graciously providing the details of how New Jersey’s VERY FIRST perinatal mood and anxiety center of its kind has evolved under her persistent efforts.

After the birth of her triplets (after 6 years of not being able to conceive naturally and one round of IVF) in 1998, Lisa suffered from what she later learned was postpartum anxiety/postpartum OCD, which greatly affected her life as a new mom.  She experienced racing thoughts and living in a constant state of anxiety.  She never received help, no one ever questioned if she was okay, and it took years for her to fully recover.

It wasn’t until 2007 when she was at a mandated lunch and learn with the Central Jersey Family Health Consortium that she learned she had what they referred to as postpartum depression (PPD).  Not telling anyone about her experience, she started volunteering for the consortium, and helped patients find resources and help. In 2011 she became the MMC Childbirth Education Manager. As facilitator for a new moms support group she quickly realized many mothers were suffering from PPD.  She then received permission to start a PPD support group, which was instantly well received and attended by large numbers of mothers.  It was at that point she broke her silence and shared her experience with others. She presented her plan to start a PPD program to new business development, but it wasn’t until April 2015 that the plan was accepted and the program was started with the support of the chairperson of OB.  The program consisted of Lisa, a therapist and a psychiatric nurse practitioner on a part-time basis. Since then, the program has grown.  It is now a mother/baby program in which babies are not only allowed but encouraged to attend with their mothers so the staff can assess mother/baby attachment at all times.  Many classes/workshops are designed specifically for the mother/baby.

Lisa and the other dedicated members of the program are excited about the grand opening that is finally going to take place on May 4th!  To date there have been intakes of over 800 women, and 500 women have received medical evaluation, treatment and referrals to appropriate services through the program.  On average, there are 30 new patients a month.  Lisa hopes the program will evolve into a partial day stay program by 2018.  The program is interdisciplinary and every member is completely passionate about helping moms/babies, normalizing this temporary and treatable illness and educating the public that this is the #1 complication of childbirth.